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Sunday, May 19, 2013

Misfortunes and Minor Victories






No more Tanning!

James Bday


Porch Flowers

Nexus 7



Sorry the pics aren't in any real order. Lately I haven't had the time to blog until now, and even today it's gonna be short.

Misfortunes


About two months ago, I got pregnant shortly after(April 14th) miscarried. As you can imagine, I was devastated. Being a mother has been a dream of mine since as long as I can remember. It still is. For lack of time, I won't go into the series of emotions and feelings I've gone through. (I might update this later if I see the need/It's already documented in my journal)

After that happened, I scheduled an appointment to see a Obgyn. We discussed the miscarriage, and how nothing I did was wrong or caused this, and that this happens to more women then is often talked about. Some even miscarry, and weren't aware.  This did give me some comfort. We then discussed other matters when trying to conceive again, and that's when we discussed my family history.

As most of you know (if not everyone). My dad had Myotonic Dystrophy. He died at age 47, when I was 16 years old. My brother KC developed this disease,  and after speaking to the doctor about this he thought it would be a good idea to go to genetic counselor.

When it rains, it pours. I always knew that I would have to deal with watching the health of my family decline, but I never thought that *I* might be at risk or that my children might be. I have NEVER shown any symptoms and so I therefore thought I didn't inherit it. (and maybe I haven't)It never phased my mind. 

After talking to my husband James, we decided that getting tested was in our best interest. After making the decision, then came the doubts, fears, and reservations. I knew I needed to support my husband, and I couldn't make this choice on my own. The outcome would effect him too, and I know to this day that Heavenly Father wants me to support him, and that he wants us to be a united front and team.

I started my new job, and pushed forward with the little strength that I had left. It felt like my plans, hopes, and expectations for my life were slipping through my fingers. I felt as though I would never be a mom, and that maybe someday my health would fade away too, leaving me crippled and debilitated. Sometimes the future still feels pretty bleak. There is so much that we just don't know in life, and I'm sure for good reason. It doesn't make it easier though.

Mercies

Through it all though, I have been able to lift my head and see a glimpse of Light and God's love and mercy. The feeling hasn't always been super strong, but I think that's because my heart is still so bruised broken. The feeling, while faint, still comes....

My Job, while new and somewhat scary, I just know will bless our family. I started learning how to use wordpress and I'm going to be make a website. You can see what I have done right now just type
kmorris.bluehoststaff.com/word
This new position pays more, and when I get more comfortable with it-It will be less stressful then my previous one. I already enjoy my supervisor and I know that the people I met in training I was supposed to meet. It's a good group, and I see myself doing well and enjoying it.

My cats. When James would leave for school, Kula would bundle himself up in my lap and snuggle me. He ALWAYS has been a affectionate kitty, but I know that he could sense something was wrong and he would even follow me into the bathroom. Having James be so busy has always been hard on me, but even more so when this happened, it was a huge blessing to have him there.  I know it sounds silly, but he's my baby. He's apart of my family and I love him so much.

It's spring and being able to enjoy the outdoors and nature has brightened my spirit. James and I just planted flowers in our yard, and where I work the scenery is breath taking. The bright spring colors, the smells, and the beauty has really helped me to stay motivated and get up and live my life. I read this scripture today: D&C 59: 18 Yea, al things which come of the earth, in the season thereof are made for the benefit and the use of man, both to please the eye and to gladden the heart; 19 yea, for food and for raiment, for taste and for smell, to strengthen the body and to enlive the soul.

I've been able to run again. When I was TTC, and when I got pregnant, I quit running. I've lost a lot of stamina, but I'm gaining it back slowly. This has helped me stay focused. As I have mentioned I have loved being in nature, and I've been able to enjoy it again! (Something I thought I was going to miss out on) It's helped me to have a goal, and to work towards it to reach it. I feel happiness when pushing new limits and when I feel I have purpose. I actually feel the spirit a lot when I run. I can hear my own thoughts, and have time to think. My prayers are more clear and concise after I've run, and it's easier to feel his presence.

Support from my friends and family. I'm a open book, and when I'm sad. It's apparent. I also can't keep to myself. I'm very expressive, and I've sought counsel with the Bishop and with many close friends. I've also been able to grow closer to my ward family. The Bishop just got called in not to long ago and he has helped me tremendously. I've had others who have texted me and checked up on. Some whom have brought me cupcakes, and others who have told me inspirational stories. They have been so gentle and kind to me.

Talking to my genetic counselor. When I called to make an appointment, I had several questions. She was the nicest medical person I have ever spoken with.  She recommended I found out which type my brother was to cut down on costs of doing all the testing. She was soo willing to address all my concerns and took the time to understand me. She said that the longer I go with out symptoms the more likely I am that I won't have myotonic dystrophy. She said there is a 50/50 chance that I am. She said that while that fraction doesn't sound good. It means that the chance of me having it are equal to me having the chance that I don't, and she said that if I do have it, my repeats could be much lower then that of my brothers, or my fathers. Meaning that I may have a much milder case later on in life. She also mentioned that if my repeats are lower, that my chances of passing it down to my children are not as likely and that if I did pass it on, my kids repeats would be like mine. The repeats wouldn't jump up drastically and that they would have a much milder form. She also reminded me that myotonic dystrophy is a adult thing. She listed examples of people she's tested who's children were fine. She said that might be the case for me. She said she didn't have a crystal ball, but there is lots of hope and no reason to panic.

James bought me a nexus 7. He ran outside on the river trail with me on Mothers Day. Something I've been begging him to do for the last year now. He's cancelled guys night several weeks in a row. Hes hugged me, and whispered "I love you" in my ear, he's been wonderful. He's been my rock and related scripture and other sacred things to my mind. I feel our marriage blossoming like it never has before. I feel his support and his love and my trust and admiration grows for him.

This song reminds me of James:


I'm learning again to trust and have faith. I know God has a plan for me, and I do see him working within my life. I'm starting to feel hopeful again. Maybe this was just a small trial I had to endure to grow. Maybe in a few months down the road, Ill be pregnant with a healthy baby. I don't know, but I know whatever happens will be alright. I know that because I'm alright now. I'm being taken care of now, and hell take care of me through it all.  I'm picking myself up and dusting myself off. Nothing can break my spirit.

3 comments:

Keira said...

I didn't understand how deep the health issues went--I wondered why you were really into gym work-outs and stuff, but now I know you are using your body well while you still can, since you live everyday with a reminder in your family of what could happen to any of us. You face fear every time you run! I'm sure you're very grateful for your health. :)

You are being very faithful and sticking close to the Spirit, and I admire you for it. Although I have never suffered a miscarriage, I think about losing Lucas, and fear the reasons why I don't already have another (or TWINS!), and it all comes into perspective--loss can haunt you. But you are stepping up to the plate anyway, which is very brave. You're not backing down. Your story is helping many, and you may not know it. Even I didn't know how deep this pain went (trips to a geneticist!), so you are teaching all of us. Keep going!!

Kira said...

Thanks Keira,

I didn't originally get into the gym for health reasons. As shallow as it sounds, it was more for cosmetic reasons, ie weight loss.

However it's certainly been a journey, and a learning process. I've gained friends and knowledge and after I achieved the results I wanted, it became a huge passion of mine waaaay before I ever thought that this might actually benefit my life.

I know now that this was a path that I was supposed to be on because of my families health line, which is just a added bonus. That was never the sole reason I started or choose continue though. It's a real hobby for me :)

You are right when you say these things can happen to any of us. They truly can. I have a friend who's 2 year old grandson is suffering from cancer, and it's heart breaking. It makes me really sad, but I know with God it will be alright some way, some how.

I believe in miracles and I believe in divine intervention, but I also believe that God works under natural law. We may not understand the laws like he does, but there is a law there. It's kind of confusing there are just so many variables in life that we just can't understand, but I think in time we someday will.

I would like to think I'm being faithful, but it's a lot easier said then done. I'd be lying if I didn't say that I was struggling tremendously. Loss certainly can haunt you, and even debilitate you if you let it. Elder Uchdorfts talk comes to mind, about knowing that darkness exists, but so does the light and it's all about where I choose to surround myself. It's an actual choice, and a hard choice, but a choice none the less.

Amongst great challenges, I try to remain as optimistic as possible. I really do see my health and the health of my family being strong, obviously I can't know for sure, but at this point I have no reason not to believe that. Well know more when we get the results of the tests. I remain hopeful and I'm learning to rely on the Lord on a whole new level.

I hope if anything that I can help some. I don't always feel the best role model, but if I can just be even just a outlet of support to let someone know they are not alone. This is a really common issue, and raising awareness is I think a really good thing.






Kris said...

What a beautiful and hopeful post. Sweet and dear Kira...you are such a blessing. The faith you have shines in this post. Thank you for sharing from your heart. Love you